CDC-RFA-DD22-2203: Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects
Closed
This grant is closed. A newer notice from the same program is open now: NIH, CDC and FDA Small Business Innovation Research Grant (Parent SBIR [R43/R44] Clinical Trial Optional) (PA-27-100). Status: Due dates in the notice, expires April 5, 2027. It is in our archive of Centers for Disease Control - NCBDDD notices from 2022.
Centers for Disease Control - NCBDDD offered grants of up to $400,000 (at least $150,000) to any type of organization. It expected to make about 3 awards worth $4.0 million in total. Applications closed on May 28, 2022.
From the official notice on Grants.gov, last changed April 19, 2022. Checked November 7, 2026.
- Award ceiling$400,000
- Award floor$150,000
- Total funding$4.0 million
- Expected awards3
- Cost sharingNot required
- Funding typeCooperative Agreement
Key dates
| Posted | March 29, 2022 |
|---|---|
| Deadline | May 28, 2022 |
| Archived by Grants.gov | June 27, 2022 |
Who can apply
This opportunity was open to any type of organization.
All 16 applicant types the notice lists
- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Public housing authorities/Indian housing authorities
- Native American tribal organizations (other than Federally recognized tribal governments)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses
- Others (see text field entitled "Additional Information on Eligibility" for clarification)
- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"
Only one application per organization as determined by the organization’s Dun & Bradstreet number will be accepted. Eligible applicants must have the public health authority, legislative mandate or otherwise show legal access to the requisite data to conduct population-based birth defects surveillance. This authority allows unique and specific access to datasets from multiple data sources that are required to implement the activities outlined in this NOFO. Eligible applicants must document this authority in "Other Attachment Forms" with attachment name "Legal Authority". CDC will consider any application that does not include this required documentation as non-responsive, and it will receive no further review. A Bona Fide Agent is an agency/organization identified by the state or local government as eligible to submit an application in lieu of a state or local government application. If applying as a Bona Fide agent of a state or local government, a letter from the state or local government as documentation of the status is required and should be submitted under “Other Attachment Forms” with attachment name “Bona Fide Agent.” If the Bona Fide Agent attachment does not specify legal authority, the applicant must include an attachment named “Legal Authority” in “Other Attachment Forms”. The award ceiling for this NOFO is $400,000. CDC will consider any application requesting an award higher than the ceiling amount as non-responsive and it will receive no further review.
Is this a realistic fit?
- Past Birth Defects and Developmental Disabilities - Prevention and Surveillance awards averaged $930,644; this notice allows up to $400,000 per award.
- Most of the program's money (29% over five years) went to colleges and universities.
- No cost sharing or match is required.
What the grant funds
Synopsis NOFO #CDC-RFA-DD22-2203 solicits non-research, cooperative agreement applications to improve health outcomes among children and adolescents affected with a congenital heart defect (CHD) and identify factors contributing to health disparities. Objectives include: using U.S. population-based birth defects surveillance system data to identify and survey parents of children with CHD about their child’s health outcomes such as cardiac and other healthcare utilization, barriers to health care, quality of life, social and educational outcomes, and transition of care from childhood to adulthood as well as needs and experiences of the caregivers. Background Congenital heart defects (CHDs) are the most common type of structural birth defects affecting approximately 1 in 110 live-born children. Based on advances in survival, there are approximately 1 million children with a CHD in the United States. With vast declines in mortality from pediatric heart disease over the past 30 years, it is vital to evaluate the health, social, educational, and quality of life outcomes beyond infancy and early childhood for affected children. However, existing U.S. population-based data are lacking these outcomes among those born with a CHD and the changes that may occur with time and age. Current population-based research relies on existing cross-sectional data from surveys such as the National Survey of Children’s Health. However, this survey does not collect sufficient data to distinguish a CHD from acquired heart conditions, nor does it have detailed information on type of CHD, age at diagnosis, presence of other birth defects, and details at birth (e.g preterm birth). Generating a population-based group of CHD-affected children is difficult. Standard survey methods, such as those of a sample household survey, would not identify sufficient numbers of children living with a CHD. Existing birth defects surveillance systems identify babies born with a birth defect, but do not continue to track identified children. Therefore, the data is limited to their birth defect diagnoses and characteristics at time of birth. For this surveillance project, we intend to use data from U.S. state birth defects surveillance systems to identify a population-based sample of children and adolescents born with a CHD and their caregivers.
Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before
From fiscal 2021 to 2025, Birth Defects and Developmental Disabilities - Prevention and Surveillance (93.073) awarded $94.9 million across 102 grant awards, an average of $930,644 per award.
| Recipient | State | Awards | Amount |
|---|---|---|---|
| The Johns Hopkins University | Maryland | 2 | $5.7 million |
| University of North Carolina at Chapel Hill | North Carolina | 4 | $4.9 million |
| University of Texas at Austin | Texas | 2 | $4.2 million |
| Massachusetts Department of Public Health | Massachusetts | 3 | $3.6 million |
| The University of Iowa | Iowa | 3 | $3.5 million |
Applying now
This notice no longer takes applications. Apply under the newer notice, PA-27-100, which is open now.
The notice on Grants.gov keeps its full text and attachments, which is useful for planning a resubmission.
Questions people ask
Is CDC-RFA-DD22-2203 still open?
No. It closed on May 28, 2022. A newer notice is open: PA-27-100, due dates in the notice, expires April 5, 2027.
Who can apply for Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects?
Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.
What is the deadline for Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects?
Closed May 28, 2022. Applications are no longer accepted; the program's newer notices are on this page when there are any.
How much funding is available?
Awards of up to $400,000 each. About $4.0 million in total across about 3 awards.
Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?
The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.
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