Rare Disorders: Research, Surveillance, Health Promotion, and Education (93.315)
Rare Disorders: Research, Surveillance, Health Promotion, and Education (Assistance Listing 93.315) is run by the Centers for Disease Control and Prevention, part of the Department of Health and Human Services. It awarded $16.2 million in 38 grants from fiscal 2021 to 2025, about $425,451 per award on average. No funding opportunity is open on Grants.gov right now.
The typical award was $240,000. Half of the 38 awards fell between $116,214 and $241,023, and they ranged from $74,998 to $2.0 million.
- Awarded, FY 2021 to 2025$16.2 million
- Grant awards38
- Typical award$240,000
- Awarded in FY 2025$0
- Size rank1,379 of 1,823
- Type of assistanceCooperative agreements
Key findings
- It is the 1379th largest of 1,823 federal grant programs by five-year awards.
- The 20 largest recipients received 98% of the money.
- Awards went to recipients in 19 states and territories.
What the program funds
To (1) Promote public health capacity by conducting research to expand the knowledge base around people with complex disabling conditions, including muscular dystrophy, fragile X syndrome and spina bifida across the lifespan, with the goal of improving their health and quality of life; (2) apply lessons learned to design public health approaches for other childhood onset complex disabling conditions; (3) develop and disseminate information from surveillance and epidemiologic research, identifying intervention strategies for secondary conditions; (4) assess access to and costs associated with health care these conditions; (5) collaborate with partners in the public and private sector to support the development of standards of care and improve health care and related services for people with complex disabling conditions; (6) deliver technical assistance to public and private organizations, universities and local and state agencies on accessing factors affecting medical, functional, and psychosocial outcomes; (7) provide leadership in health education and promotion in people of all ages who have complex disabling conditions and their families; and (8) support partners in facilitating early identification of these diseases and adoption of effective interventions.
Open opportunities
No opportunity under this program is open or forecast on Grants.gov right now. Programs often post once a year, so the funding history below shows what to expect.
Rules from the program listing
Matching requirements
This program has no statutory formula. Matching requirements are not applicable to this assistance listing. This program has MOE requirements, see funding agency for further details. Statutory formula is not applicable to this assistance listing. Matching requirements are not applicable to this assistance listing. MOE requirements are not applicable to this assistance listing.
Deadlines
Check Grants.gov for any relevant NOFO information regarding processes for applying for assistance.
Award range and average, in the agency's words
Award Amounts range from $25,000 to $655,000. Average - $152,000
Funding history and past recipients
From fiscal 2021 to 2025, Rare Disorders: Research, Surveillance, Health Promotion, and Education (93.315) awarded $16.2 million across 38 grant awards, an average of $425,451 per award.
Who usually wins
Colleges and universities received 9.6% of the money, nonprofits 2.1%.
| Recipient type | Awards | Amount | Share |
|---|---|---|---|
| Other | 33 | $14.3 million | 88% |
| Colleges and universities | 3 | $1.6 million | 9.6% |
| Nonprofits | 2 | $333,461 | 2.1% |
By state
7 states have a page for this program: those that received at least $1 million or 10 awards.
| State | Awards | Amount |
|---|---|---|
| Virginia | 2 | $3.1 million |
| North Carolina | 5 | $2.6 million |
| South Carolina | 2 | $1.6 million |
| New York | 3 | $1.5 million |
| Iowa | 2 | $1.4 million |
| Utah | 3 | $1.4 million |
| Florida | 1 | $1.1 million |
| Texas | 3 | $521,280 |
| Pennsylvania | 2 | $476,133 |
| California | 2 | $315,000 |
| Tennessee | 2 | $315,000 |
| Illinois | 2 | $309,399 |
| Wisconsin | 2 | $308,317 |
| Alabama | 2 | $284,427 |
| Massachusetts | 1 | $240,000 |
| Oregon | 1 | $239,937 |
| Ohio | 1 | $226,852 |
| Minnesota | 1 | $210,094 |
| Washington | 1 | $74,998 |