CDC-RFA-DD-26-0222: Long-term health outcomes of people living with spina bifida
Closed
This grant is closed. Who won this program's grants before is below, and similar open grants are at the end of the page. It is in our archive of Centers for Disease Control - NCBDDD notices from 2026.
Centers for Disease Control - NCBDDD offered grants of up to $300,000 (at least $100,000) to nonprofits, colleges and universities, state and local governments, tribes, small businesses and businesses. It expected to make about 19 awards worth $3.0 million in total. Applications closed on October 26, 2026.
From the official notice on Grants.gov, last changed August 26, 2026. Checked November 7, 2026.
- Award ceiling$300,000
- Award floor$100,000
- Total funding$3.0 million
- Expected awards19
- Cost sharingNot required
- Funding typeCooperative Agreement
Key dates
| Posted | August 26, 2026 |
|---|---|
| Deadline | October 26, 2026 |
| Archived by Grants.gov | November 25, 2026 |
Who can apply
This opportunity was open to nonprofits, colleges and universities, state and local governments, tribes, small businesses and businesses.
All 12 applicant types the notice lists
- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses
Is this a realistic fit?
- Past Birth Defects and Developmental Disabilities - Prevention and Surveillance awards averaged $930,644; this notice allows up to $300,000 per award.
- Most of the program's money (29% over five years) went to colleges and universities.
- No cost sharing or match is required.
What the grant funds
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before
From fiscal 2021 to 2025, Birth Defects and Developmental Disabilities - Prevention and Surveillance (93.073) awarded $94.9 million across 102 grant awards, an average of $930,644 per award.
| Recipient | State | Awards | Amount |
|---|---|---|---|
| The Johns Hopkins University | Maryland | 2 | $5.7 million |
| University of North Carolina at Chapel Hill | North Carolina | 4 | $4.9 million |
| University of Texas at Austin | Texas | 2 | $4.2 million |
| Massachusetts Department of Public Health | Massachusetts | 3 | $3.6 million |
| The University of Iowa | Iowa | 3 | $3.5 million |
Applying now
This notice no longer takes applications. Agencies often post the same opportunity again under a new number, so check the program's notices on Grants.gov and the similar open grants below.
The notice on Grants.gov keeps its full text and attachments, which is useful for planning a resubmission.
Questions people ask
Is CDC-RFA-DD-26-0222 still open?
No. It closed on October 26, 2026.
Who can apply for Long-term health outcomes of people living with spina bifida?
Centers for Disease Control - NCBDDD accepted applications from nonprofits, colleges and universities, state and local governments, tribes, small businesses and businesses.
What is the deadline for Long-term health outcomes of people living with spina bifida?
Closed October 26, 2026. Applications are no longer accepted; the program's newer notices are on this page when there are any.
How much funding is available?
Awards of up to $300,000 each. About $3.0 million in total across about 19 awards.
Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?
The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.
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