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Grants / Department of Health and Human Services / Centers for Disease Control - NCBDDD

CDC-RFA-DD-23-0002: Sickle Cell Data Collection Program

Closed Closed May 11, 2023 Opportunity CDC-RFA-DD-23-0002

This grant is closed. Who won this program's grants before is below, and similar open grants are at the end of the page. It is in our archive of Centers for Disease Control - NCBDDD notices from 2023.

Centers for Disease Control - NCBDDD offered grants of up to $600,000 (at least $100,000) to any type of organization. It expected to make about 13 awards worth $25.0 million in total. Applications closed on May 11, 2023.

From the official notice on Grants.gov, last changed February 15, 2023. Checked November 7, 2026.

Key dates

PostedFebruary 9, 2023
DeadlineMay 11, 2023
Archived by Grants.govJune 10, 2023

Who can apply

This opportunity was open to any type of organization.

All 16 applicant types the notice lists

Applicants may apply for Component A or Component B and indicate this in the first statement of their Project Narrative. If an applicant applies for both Components, their applications will be deemed non-responsive and neither will be reviewed.

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Is this a realistic fit?

What the grant funds

Sickle cell disease (SCD), estimated to affect 90,000 to 100,000 Americans, is the most common inherited blood disorder in the United States. Major complications of SCD include anemia, debilitating pain, infection, stroke, and organ damage. There is no national surveillance of SCD. Consequently, there are large gaps in our current understanding of the natural course of the disease and its variable manifestations from one patient to the next, including how vulnerable populations seek and receive SCD care. The intent of the Sickle Cell Data Collection (SCDC) program is to inform decisions and policies that may lead to significant improvements in the SCD community, a community that continues to be impacted by racism, bias, and prejudice. The efforts of the SCDC program have led to changes in health care policy and increased access to health care services for SCD at both the local and state level. SCDC data have informed the location of new SCD clinics, based on the number of people with SCD compared to the number of SCD health care specialists. They have also been used to identify people with SCD who are eligible for newly expanded Medicaid services. Additional examples of the translation of SCDC data into actions that improve and extend the lives of people with SCD, including actions reaching further than health care, alone, are expected as the program continues to expand. Through this Notice of Funding Opportunity (NOFO), CDC plans to fund recipients for a five-year period of performance to implement the SCDC program. All recipients will adhere to standardized methods for implementing SCDC, develop strategies for effective communication with stakeholders from the SCD community, and produce peer-reviewed publications and other educational materials based on SCDC findings. They will also establish or enhance their partner collaborations and explore paths by which the data may be used to inform policies beyond health care, such as those concerning transportation, education, housing, or employment, that impact individuals with SCD. There will be two components, component A (implementation and technical assistance) and component B (capacity building and implementation), with the expectation of a close, working one-on-one collaboration between each component B recipient and a component A recipient.

Category: Health.

Who has won Blood Disorder Program: Prevention, Surveillance, and Research grants before

From fiscal 2021 to 2025, Blood Disorder Program: Prevention, Surveillance, and Research (93.080) awarded $39.7 million across 36 grant awards, an average of $1.1 million per award.

Largest recipients, fiscal 2021 to 2025
RecipientStateAwardsAmount
American Thrombosis & Hemostasis Network IncNew York1$12.9 million
The Jeffrey Modell Foundation, Inc.New York1$6.0 million
Georgia State University Research Foundation IncGeorgia3$2.5 million
Regents of the University of MichiganMichigan2$1.8 million
Public Health InstituteCalifornia2$1.6 million

Top states: New York ($21.6 million), Georgia ($2.5 million), California ($2.4 million), Michigan ($1.8 million), Tennessee ($1.6 million).

Applying now

This notice no longer takes applications. Agencies often post the same opportunity again under a new number, so check the program's notices on Grants.gov and the similar open grants below.

The notice on Grants.gov keeps its full text and attachments, which is useful for planning a resubmission.

Questions people ask

Is CDC-RFA-DD-23-0002 still open?

No. It closed on May 11, 2023.

Who can apply for Sickle Cell Data Collection Program?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

What is the deadline for Sickle Cell Data Collection Program?

Closed May 11, 2023. Applications are no longer accepted; the program's newer notices are on this page when there are any.

How much funding is available?

Awards of up to $600,000 each. About $25.0 million in total across about 13 awards.

Who has won Blood Disorder Program: Prevention, Surveillance, and Research grants before?

The largest recipients over five fiscal years were American Thrombosis & Hemostasis Network Inc, The Jeffrey Modell Foundation, Inc., Georgia State University Research Foundation Inc. The program made 36 awards worth $39.7 million in that time.

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