# Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions

Source: https://welltoldgrants.com/grants/hrsa-21-079-long-term-follow-up-for-severe-combined-immunodeficiency/  
Official notice: https://www.grants.gov/search-results-detail/331850

> Health Resources and Services Administration offered grants of up to $500,000 to the applicants described in the notice. It expected to make about 6 awards worth $3.0 million in total. Applications closed on May 3, 2021.

| Field | Value |
|---|---|
| Opportunity number | HRSA-21-079 |
| Agency | Health Resources and Services Administration |
| Status | Forecast |
| Deadline | May 3, 2021 |
| Award ceiling | $500,000 |
| Award floor | not stated |
| Expected awards | 6 |
| Total funding | $3.0 million |
| Cost sharing | not required |
| Assistance Listings | 93.110 |

## Who can apply

- Others (see text field entitled "Additional Information on Eligibility" for clarification)

Per statute, eligible applicants include: (1) a state or a political subdivision of a state; (2) a consortium of two or more states or political subdivisions of states; (3) a territory; (4) a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service; or (5) any other entity with appropriate expertise in NBS, as determined by the Secretary. Per 42 U.S.C. § 201, the term “state” includes, in addition to the several states, only the District of Columbia, Guam, the Commonwealth of Puerto Rico, the Northern Mariana Islands, the Virgin Islands, American Samoa, and the Trust Territory of the Pacific Islands. Domestic faith-based and community-based organizations, tribes, and tribal organizations are also eligible to apply.

## What the grant funds

This notice announces the opportunity to apply for funding under the Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions program. The goal of this program is to ensure that newborns and children identified through newborn screening (NBS) achieve the best possible outcomes by expanding the ability of state public health agencies to provide screening, counseling and services to these newborns and children and to collaborate with clinicians, public health agencies and families to create a system of care that can assess and coordinate follow-up and treatment of newborn screening conditions.1 This NOFO supports this goal by making available funding to support comprehensive models of long-term follow-up (LTFU) that demonstrate collaborations between clinicians, public health agencies, and families.

## Questions people ask

### Is HRSA-21-079 still open?

No. It closed on May 3, 2021. A newer notice is open: HRSA-27-072, closes January 8, 2027 (62 days left).

### Who can apply for Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions?

Health Resources and Services Administration accepted applications from the applicants described in the notice. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Long-term Follow-up for Severe Combined Immunodeficiency and Other Newborn Screening Conditions?

Closed May 3, 2021. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $500,000 each. About $3.0 million in total across about 6 awards.

### Who has won Special Projects of Regional and National Significance grants before?

The largest recipients over five fiscal years were Zero to Three National Center for Infants, Toddlers & Families, University Hospitals Cleveland Medical Center, Children's National Medical Center. The program made 842 awards worth $1.4 billion in that time.