# Long-term health outcomes of people living with spina bifida

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-26-0222-long-term-health-outcomes-of-people-living-with/  
Official notice: https://www.grants.gov/search-results-detail/361002

> Centers for Disease Control - NCBDDD offered grants of up to $300,000 (at least $100,000) to nonprofits, colleges and universities, state and local governments, tribes, small businesses and businesses. It expected to make about 19 awards worth $3.0 million in total. Applications closed on October 26, 2026.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-26-0222 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | October 26, 2026 |
| Award ceiling | $300,000 |
| Award floor | $100,000 |
| Expected awards | 19 |
| Total funding | $3.0 million |
| Cost sharing | not required |
| Assistance Listings | 93.073 |

## Who can apply

- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses

## What the grant funds

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

## Questions people ask

### Is CDC-RFA-DD-26-0222 still open?

No. It closed on October 26, 2026.

### Who can apply for Long-term health outcomes of people living with spina bifida?

Centers for Disease Control - NCBDDD accepted applications from nonprofits, colleges and universities, state and local governments, tribes, small businesses and businesses.

### What is the deadline for Long-term health outcomes of people living with spina bifida?

Closed October 26, 2026. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $300,000 each. About $3.0 million in total across about 19 awards.

### Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?

The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.