# Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-24-0083-documenting-outcomes-associated-with-persistent-tic/  
Official notice: https://www.grants.gov/search-results-detail/349660

> Centers for Disease Control - NCBDDD offered grants of up to $750,000 (at least $150,000) to any type of organization. It expected to make about 3 awards worth $3.8 million in total. Applications closed on April 15, 2024.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-24-0083 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | April 15, 2024 |
| Award ceiling | $750,000 |
| Award floor | $150,000 |
| Expected awards | 3 |
| Total funding | $3.8 million |
| Cost sharing | not required |
| Assistance Listings | 93.073 |

## Who can apply

- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses
- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"

The applicant must provide evidence of access to clinic-based samples of children, adolescents, and young adults (ages 6-24 years) with a current persistent tic disorder including Tourette Syndrome (PTD/TS) and the ability to collect data on this population. The applicant must include in the application a table of contents, project abstract, project narrative, (including work plan) budget narrative, letters of support, CVs/resumes, organizational charts, a copy of their indirect cost rate agreement, and a data management plan demonstrating secure handling and storage of data. Assurances should be provided that data will be kept on restricted and/or password-protected systems that only individuals working on the respective surveillance system can access. Failure to include these documents will cause the application to be deemed nonresponsive and not be passed on for further review. The award ceiling for this NOFO is $750,000. CDC will consider any application requesting an award higher than this amount as nonresponsive, and it will receive no further review.

## What the grant funds

Eligible applicants should have the infrastructure and capacity to identify, collect, and disseminate information on outcomes associated with persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults. Specifically, this entails: 1) access to a population of children, adolescents, and young adults with PTD/TS; 2) expertise in identification of PTD/TS; and 3) capacity to collect and analyze survey data and summarize and disseminate findings.CDC proposes to allocate funds to implement a Notice of Funding Opportunity (NOFO), Surveillance of Public Health Burden of Persistent Tic Disorders including Tourette Syndrome in Children, Adolescents, and Young Adults. The purpose of the NOFO is to conduct surveillance of persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults to: • Document the public health burden (i.e., outcomes) of these disorders • Generate data that can be used to inform education and outreach activities to improve the health and well-being of individuals with tic disorders and their families. Proposed activities for this NOFO include the following: • Collaborate with CDC and other NOFO recipients to identify measures for priority areas of burden including cost, healthcare transition, suicidality, and co-occurring disorders. • Collaborate with CDC and other recipients to determine a standard survey and surveillance protocol across sites and shared data approach. • Collect and share de-identified data with CDC. • Collaborate with CDC and other NOFO recipients to analyze, summarize, and disseminate multi-site findings.

## Questions people ask

### Is CDC-RFA-DD-24-0083 still open?

No. It closed on April 15, 2024. A newer notice is open: PA-27-100, due dates in the notice, expires April 5, 2027.

### Who can apply for Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance?

Closed April 15, 2024. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $750,000 each. About $3.8 million in total across about 3 awards.

### Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?

The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.