# Surveillance of Spina Bifida across the Lifespan

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-24-0065-surveillance-of-spina-bifida-across-the-lifespan/  
Official notice: https://www.grants.gov/search-results-detail/350112

> Centers for Disease Control - NCBDDD offered grants of up to $450,000 (at least $150,000) to any type of organization. It expected to make about 4 awards worth $8.0 million in total. Applications closed on April 15, 2024.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-24-0065 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | April 15, 2024 |
| Award ceiling | $450,000 |
| Award floor | $150,000 |
| Expected awards | 4 |
| Total funding | $8.0 million |
| Cost sharing | not required |
| Assistance Listings | 93.073 |

## Who can apply

- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"

Component A. Surveillance of Spina Bifida across the LifespanThe applicant must have public health authority to conduct surveillance of spina bifida. Also, the applicant must have access to state birth defects surveillance data and state vital records data. Component B. Special Projects for Surveillance of Spina Bifida (optional)Component B applicants must submit an application for Component A. To be funded for Component B, the applicant must also be funded for Component A.

## What the grant funds

Synopsis: CDC-RFA-DD-24-0065 solicits non-research, cooperative agreement applications to conduct a project to identify a population-based sample of children and adults with spina bifida to estimate the prevalence and describe key outcomes with the goal of identifying opportunities to improve the health of individuals living with spina bifida. The population included in this surveillance activity can be an entire state or a region within a state. Individuals with spina bifida should be identified through existing data sources including the state birth defects surveillance program or vital records and long term health outcomes should be assessed using sources such as electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. This project will involve a required component (A) and an optional component (B). The total estimated funding for Component A is $8,000,000 for 5 years. The total estimated funding for Component B is $400,000 for 2 years (e.g., years 2 and 3 only) and will be subject to available funding. Background: Spina bifida is one of the most common types of structural birth defects with approximately 1,400 children born with spina bifida each year in the United States (U.S.). Current estimates for the U.S. include a greater number of adults living with spina bifida than children. Conducting population-based surveillance of children and adults with spina bifida is challenging. Birth defects surveillance systems identify babies born with a birth defect but do not follow them as children and adults. The National Spina Bifida Patient Registry (NSBPR) provides valuable longitudinal information on the clinical care provided by spina bifida clinics but lacks information from other clinical settings and from the overall population of individuals with spina bifida. Standard survey methods, such as those that sample households, would not identify enough children and adults with spina bifida to produce reliable estimates and description of the population. Therefore, the objective of this surveillance project is to conduct population-based surveillance of children and adults with spina bifida by combining information from multiple sources (e.g., state birth defects surveillance systems, vital records, electronic health records, administrative data). Through this surveillance activity, it would be possible to assess their health status and healthcare use.

## Questions people ask

### Is CDC-RFA-DD-24-0065 still open?

No. It closed on April 15, 2024. A newer notice is open: PA-27-100, due dates in the notice, expires April 5, 2027.

### Who can apply for Surveillance of Spina Bifida across the Lifespan?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Surveillance of Spina Bifida across the Lifespan?

Closed April 15, 2024. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $450,000 each. About $8.0 million in total across about 4 awards.

### Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?

The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.