# Surveillance of Muscular Dystrophies

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-24-0064-surveillance-of-muscular-dystrophies/  
Official notice: https://www.grants.gov/search-results-detail/350111

> Centers for Disease Control - NCBDDD offered grants of up to $700,000 (at least $250,000) to any type of organization. It expected to make about 10 awards worth $15.2 million in total. Applications closed on May 8, 2024.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-24-0064 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | May 8, 2024 |
| Award ceiling | $700,000 |
| Award floor | $250,000 |
| Expected awards | 10 |
| Total funding | $15.2 million |
| Cost sharing | not required |
| Assistance Listings | 93.073 |

## Who can apply

- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Public housing authorities/Indian housing authorities
- Native American tribal organizations (other than Federally recognized tribal governments)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses
- Others (see text field entitled "Additional Information on Eligibility" for clarification)
- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"

For Component B or C:Applicants must demonstrate that they have applied for Component A. Evidence can include a copy of the face page of the application for Component A.

## What the grant funds

The purpose of this NOFO is to conduct longitudinal population-based surveillance of select muscular dystrophies [Duchenne MD (DMD), Becker MD (BMD), myotonic dystrophy (DM), facioscapulohumeral muscular dystrophy (FSHD), limb-girdle MD (LGMD), Congenital MD (CMD), Emery-Dreifuss MD (EDMD), and distal MD] to describe key health outcomes and health inequities, with the goal of identifying opportunities to improve the health of all individuals living with muscular dystrophies. The population included in this surveillance activity can be an entire state or a region within a state, with the applicant utilizing multiple data sources to generate an accurate and complete population-based cohort. Individuals with muscular dystrophy should be identified and followed longitudinally through sources such as neuromuscular, specialty care and other outpatient clinics; administrative data (e.g., vital records, Medicaid/Medicare, hospital discharge); or other sources available to funding recipients. This project will involve three components. Component A (5-7 awards) includes the core surveillance and dissemination activities. Component B (1 award) includes enhanced activities of abstractor training and data quality improvement. Component C (2 awards) is an optional component; awards will be subject to availability of funding. The total estimated funding for Component A is $14,000,000 for 4 years. The total estimated funding for Component B is $400,000 for 4 years. The total estimated funding for Component C is $800,000 over 4 years. Component A objectives include: (1) estimate prevalence of select muscular dystrophies, along with mortality and survival; (2) describe disease progression and co-morbidities; (3) describe healthcare utilization before and after the publication of standards of care, (4) describe access to care and new treatments/health equity; and (5) describe risk factors and protective factors. Component B objectives include: (1) train and provide ongoing training to abstractors in standardized collection of data from medical records and (2) create and implement a plan to periodically assess data quality of abstracted records. The objectives of Component C will be to either (1) develop and evaluate novel approaches to case-finding or longitudinal data collection (e.g., machine learning algorithms, natural language processing automated data extraction/integration), or (2) describe the use of MD-specific ICD-10-CM codes by source.

## Questions people ask

### Is CDC-RFA-DD-24-0064 still open?

No. It closed on May 8, 2024. A newer notice is open: PA-27-100, due dates in the notice, expires April 5, 2027.

### Who can apply for Surveillance of Muscular Dystrophies?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Surveillance of Muscular Dystrophies?

Closed May 8, 2024. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $700,000 each. About $15.2 million in total across about 10 awards.

### Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?

The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.