# Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-24-0051-surveillance-of-congenital-heart-defects-among-children/  
Official notice: https://www.grants.gov/search-results-detail/350136

> Centers for Disease Control - NCBDDD offered grants of up to $800,000 (at least $50,000) to any type of organization. It expected to make about 8 awards worth $3.1 million in total. Applications closed on May 14, 2024.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-24-0051 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | May 14, 2024 |
| Award ceiling | $800,000 |
| Award floor | $50,000 |
| Expected awards | 8 |
| Total funding | $3.1 million |
| Cost sharing | not required |
| Assistance Listings | 93.073 |

## Who can apply

- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Public housing authorities/Indian housing authorities
- Native American tribal organizations (other than Federally recognized tribal governments)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- Others (see text field entitled "Additional Information on Eligibility" for clarification)
- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"

Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13)

## What the grant funds

Synopsis: NOFO # DD24-0051 solicits non-research, cooperative agreement applications to conduct population-based surveillance of congenital heart defects (CHD) to describe health outcomes including health equity, with the goal of identifying opportunities to improve the health of all people living with CHD. This project will involve a required component (A) and an optional component (B). The population included in this surveillance activity can be an entire state or a region within a state. Individuals with CHD should be identified through existing data sources including the jurisdiction birth defects surveillance system, electronic health records, administrative data (e.g., Medicaid/Medicare, hospital discharge), or other sources available to funding recipients. Background: Congenital heart defects (CHD) affect about 1% of all births in the United States, and are a leading cause of birth defect-associated infant mortality, morbidity, and healthcare costs. Improvements in early detection and treatment of CHD and consequently in survival have resulted in many people, including those affected by a severe CHD, living into adolescence and adulthood. An estimated two million persons in the U.S. are living with a CHD, including over one million adults; about 12% of these affected adults have a severe CHD. Most current efforts to conduct population-based surveillance of CHD have focused on monitoring newborns. However, little data exist on the descriptive epidemiology of CHD beyond early childhood in the U.S. Despite the public health burden, the lack of population-based surveillance precludes reliable data on people with CHD, their survival, healthcare utilization, and characteristics associated with long-term outcomes. Through this surveillance activity, these data will be assessed, enabling and informing efforts to improve the health and well-being of people with CHD. Objectives: Component A objectives include: (1) assess survival, comorbidities, healthcare utilization during the period 2021-2023, and characteristics associated with long-term outcomes among people with CHD; (2) assess health equity among people with CHD; (3) examine state and national healthcare policies that have an impact on people with CHD; (4) examine COVID-19 and related data such as health care utilization during the pandemic among people with CHD; and (5) work with local/state partners to use site-specific CHD data.

## Questions people ask

### Is CDC-RFA-DD-24-0051 still open?

No. It closed on May 14, 2024. A newer notice is open: PA-27-100, due dates in the notice, expires April 5, 2027.

### Who can apply for Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults?

Closed May 14, 2024. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $800,000 each. About $3.1 million in total across about 8 awards.

### Who has won Birth Defects and Developmental Disabilities - Prevention and Surveillance grants before?

The largest recipients over five fiscal years were The Johns Hopkins University, University of North Carolina at Chapel Hill, University of Texas at Austin. The program made 102 awards worth $94.9 million in that time.