# Sickle Cell Data Collection Program

Source: https://welltoldgrants.com/grants/cdc-rfa-dd-23-0002-sickle-cell-data-collection-program/  
Official notice: https://www.grants.gov/search-results-detail/342568

> Centers for Disease Control - NCBDDD offered grants of up to $600,000 (at least $100,000) to any type of organization. It expected to make about 13 awards worth $25.0 million in total. Applications closed on May 11, 2023.

| Field | Value |
|---|---|
| Opportunity number | CDC-RFA-DD-23-0002 |
| Agency | Centers for Disease Control - NCBDDD |
| Status | Forecast |
| Deadline | May 11, 2023 |
| Award ceiling | $600,000 |
| Award floor | $100,000 |
| Expected awards | 13 |
| Total funding | $25.0 million |
| Cost sharing | not required |
| Assistance Listings | 93.080 |

## Who can apply

- State governments
- County governments
- City or township governments
- Special district governments
- Independent school districts
- Public and State controlled institutions of higher education
- Native American tribal governments (Federally recognized)
- Public housing authorities/Indian housing authorities
- Native American tribal organizations (other than Federally recognized tribal governments)
- Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
- Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
- Private institutions of higher education
- For profit organizations other than small businesses
- Small businesses
- Others (see text field entitled "Additional Information on Eligibility" for clarification)
- Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled "Additional Information on Eligibility"

Applicants may apply for Component A or Component B and indicate this in the first statement of their Project Narrative. If an applicant applies for both Components, their applications will be deemed non-responsive and neither will be reviewed.

## What the grant funds

Sickle cell disease (SCD), estimated to affect 90,000 to 100,000 Americans, is the most common inherited blood disorder in the United States. Major complications of SCD include anemia, debilitating pain, infection, stroke, and organ damage. There is no national surveillance of SCD. Consequently, there are large gaps in our current understanding of the natural course of the disease and its variable manifestations from one patient to the next, including how vulnerable populations seek and receive SCD care. The intent of the Sickle Cell Data Collection (SCDC) program is to inform decisions and policies that may lead to significant improvements in the SCD community, a community that continues to be impacted by racism, bias, and prejudice. The efforts of the SCDC program have led to changes in health care policy and increased access to health care services for SCD at both the local and state level. SCDC data have informed the location of new SCD clinics, based on the number of people with SCD compared to the number of SCD health care specialists. They have also been used to identify people with SCD who are eligible for newly expanded Medicaid services. Additional examples of the translation of SCDC data into actions that improve and extend the lives of people with SCD, including actions reaching further than health care, alone, are expected as the program continues to expand. Through this Notice of Funding Opportunity (NOFO), CDC plans to fund recipients for a five-year period of performance to implement the SCDC program. All recipients will adhere to standardized methods for implementing SCDC, develop strategies for effective communication with stakeholders from the SCD community, and produce peer-reviewed publications and other educational materials based on SCDC findings. They will also establish or enhance their partner collaborations and explore paths by which the data may be used to inform policies beyond health care, such as those concerning transportation, education, housing, or employment, that impact individuals with SCD. There will be two components, component A (implementation and technical assistance) and component B (capacity building and implementation), with the expectation of a close, working one-on-one collaboration between each component B recipient and a component A recipient.

## Questions people ask

### Is CDC-RFA-DD-23-0002 still open?

No. It closed on May 11, 2023.

### Who can apply for Sickle Cell Data Collection Program?

Centers for Disease Control - NCBDDD accepted applications from any type of organization. The notice adds further conditions, so read its eligibility section.

### What is the deadline for Sickle Cell Data Collection Program?

Closed May 11, 2023. Applications are no longer accepted; the program's newer notices are on this page when there are any.

### How much funding is available?

Awards of up to $600,000 each. About $25.0 million in total across about 13 awards.

### Who has won Blood Disorder Program: Prevention, Surveillance, and Research  grants before?

The largest recipients over five fiscal years were American Thrombosis & Hemostasis Network Inc, The Jeffrey Modell Foundation, Inc., Georgia State University Research Foundation Inc. The program made 36 awards worth $39.7 million in that time.