Spinal Muscular Atrophy Foundation
Preselected recipients only
Spinal Muscular Atrophy Foundation is a private foundation in Jackson, Wyoming. In tax year 2024 it gave $3.1 million in 11 grants; the typical grant was $141,212 and the largest $238,814. It only gives to organizations it selects itself and does not accept unsolicited applications.
From its IRS Form 990-PF for tax year 2024.
- Grants paid, 2024$3.1 million
- Number of grants11
- Typical grant$141,212
- Largest grant$238,814
- Assets$50.2 million
- New grantees71%
Giving in 2024 was up from $1.9 million the year before.
71% of its 2024 grantees had not received a grant from it the year before, a sign it is open to new organizations.
Giving by year
| Tax year | Grants paid | Number of grants | Assets |
|---|---|---|---|
| 2023 | $1.9 million | 9 | $33.7 million |
| 2024 | $3.1 million | 11 | $50.2 million |
How to apply
Spinal Muscular Atrophy Foundation says in its IRS filing that it only makes contributions to preselected organizations, so unsolicited applications are unlikely to be considered. Organizations it funds are usually invited.
Foundation website IRS filings on ProPublica
What Spinal Muscular Atrophy Foundation funds
Where it gives
Its US grants went to recipients in 5 states, the most to California. It also paid $359,218 in 2 grants to recipients outside the US.
| State | Grants | Amount |
|---|---|---|
| California | 5 | $594,779 |
| Maryland | 1 | $238,814 |
| Florida | 1 | $197,907 |
| Massachusetts | 1 | $98,571 |
| Illinois | 1 | $2,500 |
Grants paid in 2024
| Recipient | Purpose | Amount |
|---|---|---|
| John Hopkins University | Characterization of gene expression in motor neurons in sma | $238,814 |
| Swiss Federal Technology Institute of Lausanne | Testing of mitochondrial modulators in sma models | $218,006 |
| Stanford University | Generation of spinal cord motor neurons from pluripotent cells | $207,000 |
| University of Florida | Characterization of muscle environment in sma | $197,907 |
| Stanford University | Oversight on the stanford-sma foundation regenerative medicine program projects | $167,825 |
| University of Edinburgh | Characterization of neuromuscular junctions in sma | $141,212 |
| Stanford University | Characterization of neuron-glial-immune cell interactions in sma | $117,494 |
| Boston Children's Hospital | Testing therapeutics that promote neuron growth in sma models | $98,571 |
| Stanford University | Characterization of muscle in sma patients | $69,000 |
| Stanford University | Development of noninvasive gene editing methods | $33,460 |
| Muscular Distrophy Association | Support of muscle regeneration summit with key muscle experts | $2,500 |
Officers and trustees
- Dinakar Singh
- Douglas Cole MD
- Gerald Fischbach MD
- Andrew Knight
- Jonathan Leff
- Helen Meates
- Stephen Mikita Esq
- Juli Oh Esq
- Simon Prisk Esq
- Story Landis
- Loren Eng
Questions people ask
Does Spinal Muscular Atrophy Foundation accept grant applications?
No. Its IRS filing says it only makes contributions to preselected organizations.
How much does Spinal Muscular Atrophy Foundation give?
$3.1 million in tax year 2024, across 11 grants, with a typical grant of $141,212.
Who runs Spinal Muscular Atrophy Foundation?
Its 2024 filing lists Dinakar Singh (Board Chairman), Douglas Cole MD (Director), Gerald Fischbach MD (Director) and Andrew Knight (Director) among 11 officers and trustees.
What does Spinal Muscular Atrophy Foundation fund?
Based on its grants, mainly education, international and health.