The Rare Disease Charitable Foundation
Preselected recipients only
The Rare Disease Charitable Foundation is a private foundation in Lexington, Massachusetts. In tax year 2022 it gave $171 million in 1 grant; the typical grant was $171 million and the largest $171 million. It only gives to organizations it selects itself and does not accept unsolicited applications.
From its IRS Form 990-PF for tax year 2022.
- Grants paid, 2022$171 million
- Number of grants1
- Typical grant$171 million
- Largest grant$171 million
- Assets$0
Giving in 2022 was up from $157 million the year before.
Giving by year
| Tax year | Grants paid | Number of grants | Assets |
|---|---|---|---|
| 2021 | $157 million | 1 | $20.0 million |
| 2022 | $171 million | 1 | $0 |
How to apply
The Rare Disease Charitable Foundation says in its IRS filing that it only makes contributions to preselected organizations, so unsolicited applications are unlikely to be considered. Organizations it funds are usually invited.
Where it gives
All of its grants went to recipients in Massachusetts.
| State | Grants | Amount |
|---|---|---|
| Massachusetts | 1 | $171 million |
Grants paid in 2022
| Recipient | Purpose | Amount |
|---|---|---|
| Individual | Pharmaceutical products to people | $171 million |
Officers and trustees
- Karen Shahinian
- Janeen Blake
- Ryan McCarthy
- Michael Riffitts
Questions people ask
Does The Rare Disease Charitable Foundation accept grant applications?
No. Its IRS filing says it only makes contributions to preselected organizations.
How much does The Rare Disease Charitable Foundation give?
$171 million in tax year 2022, across 1 grant, with a typical grant of $171 million.
Who runs The Rare Disease Charitable Foundation?
Its 2022 filing lists Karen Shahinian (Chair), Janeen Blake (Vice Chair), Ryan McCarthy (Secretary) and Michael Riffitts (Member).